tag:blogger.com,1999:blog-6233625.post5665120620533771349..comments2023-08-17T14:11:19.206+01:00Comments on Lisybabe's Blog: ♫...What's in your head, in your head?...♫Lisahttp://www.blogger.com/profile/16714918894319998184noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-6233625.post-86740971609324336812012-10-28T02:45:06.569+00:002012-10-28T02:45:06.569+00:00I agree that a psychosomatic diagnosis shouldn'...I agree that a psychosomatic diagnosis shouldn't be given until physical causes are ruled out.<br />Just wondering, has anyone ever said to you that psychological treatments can be very effective for pain even when it has an entirely physical cause? So offering counselling or group or something else talky isn't necessarily saying it's all in your head. It can be "so you've got this pain, which is crap for you, and we've got drugs and painkillers etc for you, but also try out [insert talky therapy here] because it can help you find ways of managing the pain. And if there are other ways of managing the pain, you can reduce the painkillers and still have pain controlled, and therefore be less off your eyeballs on painkillers"<br /><br />The example that I always think of is endometriosis - it's got an obvious physical cause, and in an operation it can be clearly visible in the pelvis, on the ovaries and bowel etc, and samples of it viewed down the microscope show abnormal tissue - definitely a physical problem, causing often severe pain. It can be treated with surgery or hormones or painkillers to treat the physical cause, but people also find benefit from mindfulness, patient groups, hypnotherapy etc even though it's a physical cause.<br /><br />Would be interested to know if anyone medical has ever put that concept forward to you. If they were to, would you be more likely to accept the psychological treatment if you know they weren't necessarily thinking it was a psychological problem?<br /><br />Hope your jaw improves.TTBA(v)JDhttps://www.blogger.com/profile/01930526308897660464noreply@blogger.comtag:blogger.com,1999:blog-6233625.post-15600149523812819462012-07-30T20:34:24.382+01:002012-07-30T20:34:24.382+01:00OFFS! I should be shocked at this but I won't...OFFS! I should be shocked at this but I won't be. Ignorant disablist fuckers. Assuming jaw subluxion is in your head FFS. A friend of mine with HMS has had jaw issues and they sound really scary and vile. <br /><br />I know the RNOH pain clinic who I saw 9 years ago managed to find a good line between acknowledging psychological impact and not dismissing people's real issues. I got proper painkillers from them and a friend who mid-rehab did crackup cos of stuff in their head got permission to delay the second half of rehab till they were in a better headspace. The key is working with it, not assuming :(<br /><br />I see disabled clients in my job every day who push incredibly hard like we do to live-with annoying impairment shit. Many of them get the psychosomatic crap and it's SUCH a joy to find an actual trigger/cause that they can avoid or rectify and give the unholistic egotists in the medical profession the "you didn't see this person as a person" "if you'd looked at onset occupationally you'd see correlations!". <br /><br />GRRR. I hope your GP is an unimpressed as you are as a stinky letter from them might actually get lstened to, but FFS! And what the fuck do you do now :(baraktahttps://www.blogger.com/profile/06902481143758218283noreply@blogger.comtag:blogger.com,1999:blog-6233625.post-9430918058734950502012-07-30T14:56:41.130+01:002012-07-30T14:56:41.130+01:00I'm going to ask the OI specialist when I see ...I'm going to ask the OI specialist when I see him in October.Lisahttps://www.blogger.com/profile/16714918894319998184noreply@blogger.comtag:blogger.com,1999:blog-6233625.post-7509957772141974482012-07-30T14:56:06.399+01:002012-07-30T14:56:06.399+01:00Really.Really.Lisahttps://www.blogger.com/profile/16714918894319998184noreply@blogger.comtag:blogger.com,1999:blog-6233625.post-76608177061980810722012-07-30T14:51:18.457+01:002012-07-30T14:51:18.457+01:00I'm really sorry you've been through this....I'm really sorry you've been through this. It has only really happened to me once (surprisingly enough, given my diagnosis - I've had a few doctors who gently implied a psychological element, but only one who was like this). Fortunately for me, I spent the appointment in giggles, and it was only a GP I saw when my regular GP was away. <br /><br />"An assumption of conversion disorder should only be reached once you've ruled out all logical physical possibilities."<br /><br />You also need some theory as to what's being converted, so to speak. If someone has not experienced any stress or trauma and they have unexplained neurological symptoms, it is probably more useful to accept the absence of diagnosis than to treat them as if they have a mental illness. Being treated as if you don't know your own mind - when you feel fine but are being told you are actually in great mental distress - is fairly damaging. And to be honest, when you have a mental illness and physical symptoms, it's fairly damaging to be told that your mind is manifesting these symptoms, unless there's very strong evidence to suggest actually true.<br /><br />The default position, if symptoms are unexplained, should be that symptoms remain unexplained. In this case, your symptoms aren't even unexplained, so it is truly appalling. <br /><br />Also, group therapy for people with jaw pain? Really?!The Goldfishhttps://www.blogger.com/profile/15213378454070776331noreply@blogger.comtag:blogger.com,1999:blog-6233625.post-38612147367507315412012-07-30T14:06:20.654+01:002012-07-30T14:06:20.654+01:00God, it's depressing that there are people in ...God, it's depressing that there are people in the medical profession that are so bad. And ultimately I'm not sure I wouldn't file this kind of dismissal of the patient's needs and medical evidence as a form of disability hate.<br /><br />Fingers crossed you eventually negotiate your way around the disablist f*ckwits and get the treatment you need. Do your OI peeps not do maxillo-facial, can they recommend/refer you to someone sympathetic/with a clue?<br /><br />As for amitryptiline - try finding someone with Chronic Pain who hasn't been prescribed it at some point!DavidGhttps://www.blogger.com/profile/11734028655032503805noreply@blogger.comtag:blogger.com,1999:blog-6233625.post-62029918394791544252012-07-30T10:57:53.124+01:002012-07-30T10:57:53.124+01:00Hi Lisa - I have hms/eds and also get a lot of jaw...Hi Lisa - I have hms/eds and also get a lot of jaw pain - I am also in a group of us in Manchester - nearly all of us have jaw problems - it is extremely common with hypermobile people - I was also sent to a pain clinic about 5 years before actually seeing a rheumatologist and getting my diagnosis which is known as the 'bull**t years' (it was a touchy feely one' despite a physio there assessing me they didnt look for or spot the hms. It was another physio who spotted it. Im wondering if your gp or this pain clinic your at would refer you to a physio as they do seem to be a bit more up on hms probs than they used to be. coincidentaly also have inflamed sinuses and a lot of migraines - but was told by neurologist they werent related? (((Big Hugs))) and I hope they see sense with this and you get the treatment you recquire - which is physical for a physical problem!! xxx ♥Anonymousnoreply@blogger.com